9
ASKING ABOUT DISABILITY
WHY ASK ABOUT DISABILITY?
• Disability is an important, but oft-overlooked, dimension of broadening participation in computing.
To date, there has been relatively little data collected on this demographic characteristic within the
computing community. The reasons for this are explored in this article from ACCESS Computing
that advocates for collecting more and better data on disability.
• Like other demographics, including questions about disability can allow you to compare responses
across groups, and may enable you to learn more about making sure your program/intervention is
inclusive for people of all abilities.
• Here is the ADA definition of disability: Persons with physical or mental impairments that
substantially limit one or more major life activities.
• Note that some individuals may self-identify as having a disability even if they do not have an
official diagnosis.
• Note that some individuals with a disability may not identify as “disabled” and/or may not choose to
disclose any disability on an evaluation or research survey.
• Note that at the K-12 level, there may be data available with student records under the Individuals
with Disabilities Education Act (IDEA) or Section 504 of the Rehabilitation Act (e.g., IEP or 504 plans).
• If you ask about ability/disability prior to implementing your program or intervention, you can provide
accommodations needed by participants. (In other words, doing so could be a program
administration-related question as well as an evaluation-/research-related question.)
• As with all survey questions seeking sensitive information, it is important to ask yourself why you are
collecting these data and what you intend to do with them. Also, be sure to indicate to respondents
how the collected data will be used and stored.
BELOW ARE THREE OPTIONS FOR ASKING ABOUT DISABILITY ON A SURVEY.
• If your legal department or Institutional Review Board does not allow you to ask about specific
conditions or diagnoses, then use Option 1. If you can ask a two-part question, and particularly if you
plan to publish your data, then use Options 2 or 3 to collect the fullest information possible.
• Whichever option you choose, keep the question consistent over time if you want to collect
longitudinal data. For the sake of reproducibility, in reports or articles, share the wording of
your question.
OPTION 1
Do you identify as a person with a disability or other chronic condition?
Yes
No
Prefer not to answer